Runs in the family is not a diagnosis, and the right diagnosis can change everything. In this video, Family Heart Ambassadors share their personal experiences with familial hypercholesterolemia (FH) and elevated lipoprotein(a) [Lp(a)], and how finally getting the correct diagnosis transformed their lives, their care, and their families’ futures. | Family Heart Foundation
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Genetic counselor, Heather Zierhut, explains how familial hypercholesterolemia (FH) causes inherited high cholesterol. FH is the most common genetic condition that causes high cholesterol. Left untreated, FH causes early heart disease including heart attacks. This video provides a unique explanation for how the "snow plows" of the LDL-clearance process works. Check it out! www.theFHFoundation.org | Family Heart Foundation
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FacebookFamily Heart Foundation
Only 1 in 300,000 people live with homozygous familial hypercholesterolemia (HoFH), but the impact goes far beyond the numbers. Living with a rare disease like HoFH can mean lifelong treatments, emotional challenges, and feelings of isolation. That’s why the Family Heart Foundation brings this community together — to address an unmet need for connection, empower individuals with science and support, and remind every person that they are not alone. In her latest blog, our HoFH Gathering co-chair,
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469 views5 months ago
FacebookFamily Heart Foundation
Chloe is a senior in high school and lives with homozygous familial hypercholesterolemia (HoFH), the rare and more severe form of familial hypercholesterolemia (FH). Because of her dad's emergency heart surgery when he was just 43, Chloe was diagnosed at a young age and has been treating her condition since she was a small child. So we wanted to ask her about her life with HoFH for this #RareDiseaseDay #KnowHoFH | Family Heart Foundation
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What is Familial Hypercholesterolemia?
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People with familial hypercholesterolemia (FH), homozygous FH (#HoFH) and high Lipoprotein(a), or Lp(a), are at risk for early #heartattack and #stroke. Many already have #heartdisease due to a missed diagnosis and delayed treatment. The Family Heart Foundation uses research, advocacy and education to beat family heart disease. Learn more about #genetic cholesterol disorders at FamilyHeart.org #WorldHeartDay #KnowFH #KnowLpa #KnowHoFH #KnowLDL #CholesterolEducationMonth #RunsInTheFamily | Family
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