Most people hear the names of medical conditions every day without giving them a second thought, but those names shape how we understand illness, how doctors diagnose it, and how society treats the ...

Ayik is an advocate for people living with rare diseases. Recently, the smoldering embers of conflict in my family’s rare disease community have burst into flames over the use of an eponym: ...

Upset woman feeling like a social outcast as she has been suffering from bullying and discrimination. She feels excluded, offended and hurt and is sitting alone in cafe. Disease names are confusing, ...